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ISPB and Prevent Blindness Illinois (PBIL) have designated May as the second annual “Inherited Retinal Disease (IRD) and Genetic Testing Month.” To educate the public and allied health professionals, we offer a variety of free resources on IRDs, including educational videos featuring medical experts and individuals living with an IRD, webpages, shareable social media graphics and fact sheets in English and Spanish.

New this year, Prevent Blindness is debuting the Focus on Eye Health Series episode, “STARGARDT DISEASE: A CONVERSATION WITH BRYAN AND BRADFORD MANNING OF TWO BLIND BROTHERS.” Jeff Todd, president and CEO of Prevent Blindness, speaks with the brothers about their journey with Stargardt disease, advice for parents of children with the eye disease, and their non-profit business that was created to provide funding to cure blindness. The interview will also be featured in the new PREVENT BLINDNESS FOCUS ON EYE HEALTH PODCAST.

Other Focus on Eye Health Series episodes related to IRDs include:

  • Stargardt Disease,” with Elias Traboulsi, MD, MEd, Pediatric Ophthalmologist and Geneticist, Department of Ophthalmology, Cleveland Clinic.
  • Inherited Retinal Disorders and Genetic Testing,” with Alina V. Dumitrescu, MD, Clinical Associate Professor of Ophthalmology and Visual Sciences, Pediatric Ophthalmology and Strabismus, Inherited Eye Disease at the University of Iowa Hospitals and Clinics.
For more information visit HERE
Our Spring 2025 interns Shaden Rafati (left) and Miranda Ludwig (right) at the 2025 Mckinley Health Fair in Urbana-Champaign


Community Happenings
 
Our staff, team of interns, and volunteers provide eye health education and outreach at all types of community events - including health fairs, presentations, conferences, and screenings!


May 26, 2025
10:00am - Mt. Sinai Wellness Resource Fair: Chicago, IL

May 29, 2025
3:00pm - Women's Wellness Event: Cicero, IL

June 23, 2025
10:00am - Vision Screening for Diabetes: Chicago, IL

July 9-11, 2025
VSP Mobile Eye Clinic: Various Locations in Chicago, IL

 

If you have an event you'd like ISPB/PBIL to attend, please reach out to rbarraza@preventblindness.org 
Save the date!

Join us for the 2025 Focus on Eye Health Summit, a groundbreaking gathering of leaders in public health, eye care, and government sectors. This year’s theme, Perspectives in Vision, emphasizes the need for a collaborative, multidisciplinary approach to addressing eye health challenges in an evolving world.

For more information visit: HERE
Copyright © 2017 Illinois Society for the Prevention of Blindness

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Illinois Society for the Prevention of Blindness | https://eyehealthillinois.org/
Prevent Blindness Illinois https://preventblindness.org/contact-us/
 
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