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My Retina Tracker Genetic Testing Program

Do you have a clinical diagnosis of inherited retinal degeneration (IRD) and live in the United States and/or the US territories? The Foundation Fighting Blindness, in partnership with Blueprint Genetics and InformedDNA®, offers an open access, no-cost genetic testing program. Please visit their site to find out if you are eligible.

The program offers people with an IRD access to the highest quality genetic testing and genetic counseling. Although it is not required for participation, this program offers an easy opportunity to join the My Retina Tracker Registry. This gives individuals the opportunity to contribute to research and development, and the opportunity of being contacted about relevant clinical trials.

The program provides patients with a 322-gene panel targeting relevant genes associated with IRD. Unique features of the panel include the entire mitochondrial genome, full RPGR coverage, high-resolution copy number variant detection and comprehensive coverage of IRD related non-coding variants. The program offers no-charge genetic counseling.

Ordering is easy through Blueprint’s online portal, Nucleus. Results can be viewed in Nucleus approximately 4 weeks after Blueprint Genetics receives the sample.

September 2023 Newsletter From ISPB & PBIL

Sport’s Eye Safety Month New ANNUAL DATA from ISPB and PBIL shows that there were more than 32,000 sports-related eye injuries treated in the United States last year, an increase...

September is Sports Safety Month

New annual data from ISPB and PBIL shows that there were more than 32,000 sports-related eye injuries treated in the United States last year, an increase of almost 20...

My Retina Tracker Genetic Testing Program

Do you have a clinical diagnosis of inherited retinal degeneration (IRD) and live in the United States and/or the US territories? The Foundation Fighting Blindness, in partnership with Blueprint...

New Resources for Reducing Eye Strain from Screens

In response to increased virtual and screen-based activities during the coronavirus pandemic, ISPB and Prevent Blindness Illinois have launched a new awareness campaign,, Take a Screen Time Out. All...